I have added a new page to this site – Project Scleroderma. This non-profit is very dear to my heart, hence why I became a member of the Project Scleroderma Awareness Committee. Their mission statement is:
“…together we will raise global awareness, encourage support of research, and serve as a platform for patients to voice their stories and champion their cause”
I am passionate about supporting this group as one of their main goals is to simply raise awareness of Scleroderma. When I was first diagnosed, I had never heard of the disease. In the years that have followed, I am continually shocked at how little is known; both in general, and also by the medical community. I would be grateful if you would take the time to visit my new page, and then watch the short videos or visit the Project Scleroderma website
I love it!
I felt shitty all weekend; worse than usual. Most of my joints were sore at some point, sometimes all at once. I seem to be having more troubling swallowing, a common symptom of Scleroderma. If it gets much worse I guess I’ll have to go for another Gastro endoscopy! Yuck!! My eyes have also been very dry, thank God for eye drops! I should buy shares in one of the companies! I had my Methotrexate shot (25mg) on Sunday evening so it’s common for me to feel crappy for a few days. Wednesdays (sometimes lasts until Thursday) tend to be my best days and then it starts to go downhill again. One big, happy cycle. Thank God for my lift chair! I am in love with this chair. Will write about my lift chair very soon!
Finally got this damn thing up and running! Took me awhile but I suppose that’s to be expected if one is not tech savvy (and brain foggy). Welcome to any and all that may pass by this blog. My hope is to share some of my trials and tribulations with others who may also be living with an autoimmune disease. Please feel free to comment on any part of this blog – good and bad!