I have added a new page to this site – Project Scleroderma. This non-profit is very dear to my heart, hence why I became a member of the Project Scleroderma Awareness Committee. Their mission statement is:
“…together we will raise global awareness, encourage support of research, and serve as a platform for patients to voice their stories and champion their cause”
I am passionate about supporting this group as one of their main goals is to simply raise awareness of Scleroderma. When I was first diagnosed, I had never heard of the disease. In the years that have followed, I am continually shocked at how little is known; both in general, and also by the medical community. I would be grateful if you would take the time to visit my new page, and then watch the short videos or visit the Project Scleroderma website
I love it!